Touch Me I’m Sick
The medical industry needs some work. I spent two years in pain and thousands upon thousands of dollars while doctors shrugged their shoulders and passed me off to the next doctor before a test for an unrelated issue revealed two boulders in my kidneys. I had cameras shoved in every orifice looking for the source of the pain in my side that doubled me over before a CT scan on my intestines showed giant stones in both kidneys, one of which was completely blocking the passage of fluid and shutting down functioning. No wonder I felt like shit for two straight years.
Of course once I knew the stones were there, it was all I could feel. I had visions of peeing out a slab of granite in the middle of my work day while pretending my insides weren’t turning into jelly. It took two trips to the ER, three trips to the OR and a half dozen office visits to remove one stone only to find out the other one was shrinking itself and being reabsorbed into my body. During one of the office visits, an old, white, male doctor told me I wasn’t in pain after pulling a 3″ long tube through my urethra. I thought I misheard him until he said “the stent is out, the pain is gone”. I didn’t think I would ever have to explain to an old man the concept of body kinesthesia, but apparently I did, so I did explain. I pointed at him and said “No. That is your body” then pointed to myself and slowly said “and this is my body. I am telling you that THIS body is still in pain. I understand that the pain will dissipate, but am asking what to do now, while I am still in pain”. When he tried to respond I stopped him and said “you know what, never mind. We are done here. I won’t be needing a follow up appointment with you”. I went home and slept for 5 hours straight at 11am due to the pain I was NOT in. When I woke up, I found a female Urologist to follow up with.
During the last few years while I have been navigating this situation, I have learned a few things. Emergency rooms are a waste of time unless you are attempting to score drugs or something is broken. They specialize in nothing, so do not want to perform anything other than run tests to send off to a specialist three weeks later. During my first trip to the ER, they gave me Flomax to “make it easier for the stones to pass” after being told the stones were more than double the size of passable. During the second trip, they attempted to give me the pain medication I am allergic to. They proceeded to run the same tests repeatedly just to prove they were doing something. My insurance promptly responded to the bills for these tests demanding that I explain why they were necessary.
More importantly I learned that if you do not advocate for yourself, shit is not going to get done. Doctors do not believe women are in pain. I saw multiple specialists before I was properly diagnosed for a fairly common ailment, and it was an accident that I was even diagnosed. The doctor who ordered the test blew me off once he learned that my problem was in my kidneys and not my stomach. Instead of referring me to a proper Urologist, he sent me on my way with the yellow pages. The test that found the stones was the fifth test that doctor ordered in 18 months. I literally had to jump up and down to get that test while all of my doctors shrugged their shoulders and sent me to the next one in line. My left kidney was barely functioning and all of these doctors were blaming menopause. All of these male doctors were blaming menopause.
The good news is I hit both my deductible and out of pocket max for my insurance before the end of the first quarter so I am seeing every doctor and running every test I can think of by the end of the year just to make sure there are no other parts of my body on strike or ready to fall off. Maybe I will finally find out what exactly causes me to sneeze uncontrollably every morning and why my knees sound like popcorn popping every time I squat. I am also able to see my chiropractor monthly and have preventative tests on my heart and lungs. Maybe I can also have this silver lining assessed since I seem to keep finding it.
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